Saturday, July 3, 2010

Rare Condition of Lizzie Velasquez


 


Lizzie Velasquez is 21 years old and lives in Austin, Texas.  She suffers from a rare condition that prevents her from gaining weight, even thought she eats up to 60 small meals and consumes between 5,000 and 8,000 calories daily. 

She was born premature at 2 lbs. 10oz and remained tiny as a child.  She has a syndrome that prevents her body from gaining weight and putting on body fat.  She is blind in one eye and weights just 60 lbs.

Doctors do not have a name for her condition as it is extremely rare.  She is part of a genetic study being conducted at the University of Texas and the closest doctors can come to a diagnosis is that she might have a form of Neonatal Progeroid Syndrome that causes accelerated aging, fat loss from the face and body, and tissue degeneration.

Lizzie hasn't let a lack of a diagnosis affect her life.  She just wrote a book and wants to share her story with others.  She has her own website here.  What an inspiring young woman!

16 comments:

Kellie said...

How very sad, but amazingly strong, with an incredible perspective and attitude. I remember reading about progeria from the book "When Bad Things Happen to Good People" I agree totally inspiring, thanks for posting the video as well!

Wellescent Health Blog said...

Good for her in being such an inspirational figure given the severity of the condition and its impact on her daily life. Imagine just the difficulty in not being able to sleep for any length of time at all... Writing a book, even with assistance, would be quite a challenge.

CountryMidwife said...

God Bless this strong, amazing, inspiring young woman. Find your Joy, Lizzie, and others will follow!

kumara said...

Thank you for the info. It sounds pretty user friendly. I guess I’ll pick one up for fun. thank u

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mimi said...

what a strong person.she went to the same highschool that i am going to right now. go coogs!

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